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How To Be Made Whole

How To Be Made Whole

We are constantly wanting to change specific things about our life.  Our hair, our weight, our finances, our job situation or our disability. The list can go on and on.  We are thinking that if this one thing changes, then we will be set.  We think that we will not have to worry about other things because this change will in essence “fix us”.  We think, “If this changes, then everything will be alright.”

After our daughter was born with a severe disability, we were faced with the impossible task of changing or fixing her.  We simply could not take away her disability. Don’t get me wrong.  We researched, planned, went to the best doctors, and…… we prayed for months…years.   It became clear after a while that she was not going to change from this disability.  So, now what?  How do you live with something that is not changing?  We then begin to explore the idea: Does it really need to change in order to be ok?  Does she need to change in order to a good or valid person?  Does she need to be healed so that she can have a good life or that she can be a meaningful and whole person?

I believe that God says no. No, your life does not need that one thing to change in order for your life to be whole or meaningful.  Watch this video on our conclusions:

In no way are we saying that God does not heal and change things in our lives.  In fact, our family still prays for God to perform miraculous acts in our life.  We believe that he is able and that in many cases he does.  However, the bigger picture is that we do NOT have to wait on these miracles in order for us to live in peace. We do NOT have to rely on these changes in order to feel good about ourselves or distrust God in the difficulty. 

God offers peace that transcends our surroundings and what we can figure our with our minds.  

And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:7

One of our Great Life Episodes

One of our Great Life Episodes

In 2007, we were living in a 100 year old farmhouse.  It was situated on a 130 acre farm north west of Lockhart, Texas. There were beautiful rolling hills, clusters of mesquite and Spanish oaks, hay fields and a handful of cattle to keep things interesting.  We were renting the house from some close friends who had owned the farm for a few years.  Our kids absolutely loved roaming the fields and fishing in the bass ponds.  They are amazing on bikes now because they learned how to ride on bumpy dirt roads.

hose

Jude watering the front yard. Barn in background was originally built in 1903.

farmers

Working our first garden. Jude quite possibly eating dirt.

A whole lot of that life felt like we were living back in time. The house was fully remodeled, but creaked and shifted all the time.  We loved sitting on the porch in the evenings and watching the sun go down.  We often would watch huge thunderheads form over the fields and bring much needed rain to the hay fields.  As we sat on the front porch and the wind breathed on our face, our minds would wander back to the folks who settled the frontier over a century ago.  They saw the same hills, animals, and sunsets.  There wasn’t a whole lot that separated us from them. Of course, then we would flip on a light or turn on the ceiling fan, launching us back into the 21st century.  Erica loved living out there and started to channel her inner organic, sustainable living self.  “We need to get some chickens and eat eggs from free range chickens.  The poor chickens we get eggs from are shot up with all kinds of hormones.”  I’m the typical American man. I said, “What will they taste like? If the chickens get exercise every day will they taste better? I’ve heard if chickens are able to eat from the yard, then the eggs taste nasty.”

A couple weeks later, I was building a chicken coop.  That is usually how discussions go in our house.  Erica has an idea.  I don’t understand it and don’t really see the need in changing or fighting the standard way of thinking.  She has read a blog or seen a documentary on Netflix.  That means we need to change our life.  After a few weeks of “discussions” I go along with it.

Our plan was to get six or eight chickens after I built the coop.  I come from a long line of carpenters.  If I am going to build a coop, it is not going to be some little crappy shed. We are going to have the best looking and operational coop this side of the Mississippi! I grabbed draft paper, pencils, rulers and started the blueprints for our chicken coop. This was going to be epic.  We picked out a bright red for the walls and bright white for the trim.  There would be an enclosed yard with a two-story coop with doors to lock the chickens in. We would place small hinged doors on the outside of each chicken bay so that we could reach in and grab the eggs each morning.  It took me around a week to complete the chicken mansion. I was proud.

papajude

Structure is up! Still need finishing touches and paint.

coopinside

Tired. Laying down on the job. Showing the roominess!

We took the forty-five minute trek to Seguin and selected the finest chicks we could find.  They were cute and vulnerable. We really didn’t know what we were doing. We weren’t sure how long it would be before we were going to start harvesting our delicious organic, free range, hormone free, eggs (that were not going to taste gross).  We would let the chickens out in the morning and then open the door for them to enter at night. Sometimes, they would simply go in without drama. Other nights they were down right rebellious.  I would try to round them up. Rounding up chickens…yeah not a good idea.

chicks   redcoop

Check out these videos of us trying to get the chickens back in the coop! This was early on (rookies)
If you are reading this post via email and videos aren’t available, you can click here to see them.

After a couple of months, we started to gather eggs. Honestly, they tasted really good.  The shells were so strong. You could literally drop them on the ground and they wouldn’t break.  They would last a really long time before going bad. In fact, we never really found any bad eggs.  We would give some away when they would produce more than we could eat.  Overall, it was not a big hassle.  We would need to feed them daily, check their water, collect eggs.  We would clean out the coop every month or so.

The biggest challenge was all of the other creatures on the farm that wanted eggs. Who knew that opossums, raccoons, hawks, coyotes, rats, and snakes liked fresh, organic, free range, hormone free eggs as well.  They actually liked eating fresh chicken also.  We were constantly fending off the predators. These animals would dig holes under the coop. They would tear the wire off the frame.  They could pry the door open.  Sometimes, we would hear the noise, run out, and deal with the commotion.  I would go out at night with a shotgun and scare off the ‘possums.  I might have thinned out the population a little bit.  Other times, we would not be at home or the attack was stealthy.  We would come out the next day to find no eggs, a dead chicken, or even a missing chicken.  Those were sad days.  We would have a little memorial service with our 1yr and 3yr old boys.  They were learning the way of life on the farm.  The circle of life.

One night we were putting the dishes up after dinner when we heard a large commotion out in the coop. The chickens were riled up. Really upset. They were calling for Erica to come help them out…please!  Erica grabbed a flashlight and headed out to the coop.  It took a couple minutes to get out there in the dark.  When she arrived on the scene, she flashed the light around the coop to determine what the problem was.  There was nothing outside of the coop, so she walked into the fenced area. She needed a better angle to see inside the coop where the chickens were bawking up a storm.  Once she flashed the light inside, she saw a large black snake in the coop with a egg in its mouth!

“Oh, h@## no!!” thought Erica as she opened the small door to the coop.  She reached in the coop with her flashlight and started beating the snake on the head.  I’m not sure what the snake thought at that moment, but one thing was for sure.  He had met his match and realized that releasing the egg and leaving the coop was a much better than getting beat in the head by this crazy monster.  The snake spit the egg out of his mouth and slithered out of the coop.  Erica harvested the egg, caressed the chickens and reassured them that they were her special babies.  Just call out and we will come to the rescue.

The next day we ate the egg.

Wow! A lot has changed in the last 5 years. We now live in a suburban neighborhood and buy our eggs from the local grocery store.  There are a lot of things about the farm that we miss.  There are a lot of things about our new home that are incredible.  It’s interesting how life changes drastically and we find the resiliency to thrive through the Grace of God, friends, and a little determination (beating a snake with a flashlight).

 

How We Talk to Kids About Life Being (un)Fair

How We Talk to Kids About Life Being (un)Fair

One night when Kennady was in the hospital, Kennady’s home health nurse came up and sat with her so I (Erica) could go out get some dinner and feel the sun on my skin.  On my way out, I decided to step in to the gift shop because they had these big shiny red balloons that said “SALE”, which is an instant magnet for most women.

I proceeded to call my husband and tell him that this store had a very cute necklace and that it was thirty percent off, which made it only a mere thirteen dollars, and that seeing as we are in such a stressful time I should really do some sympathy shopping and buy this for myself.

Alas, this ploy did not work and I made myself leave the store empty-handed,  content that I could use my money to buy myself food to put in my belly instead.

On my way out the door, there stood sweet Jesse.  Jesse gave birth to  her precious baby boy Wyatt, and her second child with Cystic Fibrosis, just a little over two weeks ago.  She was on her way in to see Wyatt in the NICU and I was on my way out to get something to eat.

We stopped and chatted for a while and began to discuss our children and their special needs and how living a life with a special needs child shapes you in so many ways you never realized it would or could.

One of the ways that this life is shaping us,  is through us shaping our children and the next generation.

IMG_9196Robin and I feel strongly that the challenges we and our children face in this life will build our character and make us stronger, if we allow it.

Character: 1  one of the attributes or features that make up and distinguish the individual 2  the detectable expression of the action of a gene or group of genes 3  the complex of mental and ethical traits marking and often individualizing a person, group, or nation

Wheew!  That is a lot of things to cover, but we will focus on just one point this time around.  Character:  One of the attributes or features that make up and distinguish the individual.

Character traits can be good or bad, strong or weak, life-giving for life-taking.

Our boys both have a sister with multiple special needs, food allergies and last but not least, they are preacher kids (holla back atcha if you know what I mean).

Talk about opportunities to build your character.

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My Favorite Part of the Day (lately)

My Favorite Part of the Day (lately)

book reading often happens in this sweet spot

book reading often happens in this sweet spot

Lately, my (Robin) favorite part of the day is the sweet spot right before the kids get in bed and right after the bedtime preparations have been made. The bedtime preparations part is usually BRUTAL. Homework done, dinner, Baths, PJs, brushing teeth, meds. That can often be like fighting dinosaurs. We have been trying to get that done a little earlier so that we have a few minutes before the kids actually crawl into the bed.

The kids have their pajamas on, their breath is fresh, they are getting sleepy.

This past Christmas, Erica and I casually got them an indoor basketball hoop. Little did we know how BIG of a success that would be. It easily is the favorite and most used gift of the year. We spend some quality time at the hoop each night before they are tucked in.

Here is a clip of me teaching Jude how to post up. If you are an actual basketball player, please keep in mind that I am 5’7″ and have actually never posted up on anyone myself. Jude will need some more accurate training at some point.

MadeMeaningful Song!

Last year, one of our friends wrote a song for Kennady! Kaley Switzer of Round Rock, Texas was 14 years old when she wrote and recorded this demo.

Kaley has overcome huge hurdles of her own. Check out her story here.

Made Meaningful

Written for Kennedy Steele by Kaley Switzer

Why does the world keep on askin’

Oh why does have to be

Why does the world look at me differently

But in your eyes, you see perfect me

 

When I think I can’t

You tell me I can

I try to be someone different

But you still love me for who I am

I’ve been made meaningful

You make things beautiful

I’ve been made meaningful

All things wonderful

I know you never make mistakes

Your perfection is supreme

You made us all for a purpose

Your creator of all dreams

I’ve been made meaningful

You make things beautiful

I’ve been made meaningful

All things wonderful

Jesus loves the little children

All the children of the world

God loves the little children

All the children of the world

I’ve been made meaningful

You make things beautiful

I’ve been made meaningful

All things wonderful

 

 

Another Video of Kaley!