Robin and I haven’t posted since Kennady got home from the hospital during her last stay because the pace of life right now, feels similar to the pace of an avalanche at your back while skiing straight down a hill.

Kennady made it home and recovered great after her baclofen pump was implanted.

Approximately 1 month out from the surgery, she got an infection in her site which ultimately resolved on it’s own.

10 days ago (2 weeks after the last infection healed up) Kennady’s incision on her back, developed a red raised spot on it.  This grew over the week and then the redness spread to the front of her belly and incisions.

I took her in to the E.R. on Saturday knowing that we were most likely not leaving until we got some antibiotics, at a minimum.

Low and behold, she was admitted.

The doctor came in the following morning (from vacation) to operate on her wounds.

The goal was to clean the infection out and then make a plan.

Unfortunately, when the doctor went in, the infection was concerning enough, combined with a positive culture for Staph, that she had to have her entire baclofen pump and catheter removed.

We are extremely disappointed.  Disappointed doesn’t even seem to fit.

There really aren’t words right now.  It feels like such a long journey to end up in this place.

Today she had a picc line placed so that she could get antibiotics for the next 2+ weeks, as she is healing.

The doctor told us that Kennady will need to heal from this surgery and infection and that in a few months we could possibly put the pump back in.

There is so much to process right now,  we are just being here with Kennady and spending time with our boys.

I will be leaving to go take my final exams on Wednesday evening, and will return on Saturday.  This leaves Robin alone with the boys and a girl in the hospital.

Fortunately, we have lots of wonderful friends and family on standby to help.

We are in the process of trying to get back home with our home health care company.  This way, we can avoid the extended stay at the hospital and be in the comfort of our home

We don’t have a solid plan yet, but please pray that it will be clear each step that we take.

Thank you for all of your love, prayers and support!