Monday afternoon Kennady started throwing up big time. This is not anything new. In fact, she throws up quite a bit and we have gotten used to it. Honestly, the ‘throwup’ is not near as bad as other kids because she only eats ‘formula’. Anyway, it is not easy and we always have to be on guard to turn her on her side so that she will not choke on it. One time that happened as a 2yr old and she stayed 10 days in ICU with pneumonia.
It took a turn for the worse on Monday, when we begin to see blood in the ‘throwup’. At that point, we decided to take her to the ER at Dell Children’s hospital in Austin. I insisted that I be the one to take her. Erica stayed home with the boys.
When we got there (8:45pm), it was PACKED with people. Fortunately, they got us in quick (advantage to have a child with special needs). As soon as she got to the ER room, she started smiling and perking up. Here is a pic.
From that point on, she did not throw up and had no other symptoms. They did a catscan and xray to confirm that her shunt had not clogged again. They tested urine for infection. Nothing…Well almost nothing. They tested her blood, but for some reason did not check her electrolytes. So, everything looked normal and we were sent home around 1am.
Everything was normal until 4pm Tuesday. She started throwing up big time. At this point, she couldn’t hold water down and we decided to take her back to the hospital. This time Erica went and made sure they checked all the components in the blood. They found that her sodium levels were low.
From birth she has struggled with her sodium levels. She lacks a hormone that regulates her kidneys. When she doesn’t get the right amount of medication, she pees too much or too little. This throws her endocrine system off. Sodium levels are affected and she struggles. The worst case scenario is that she would pee herself into dehydration and eventually die. As she grows and her body changes, she needs more or less of the medication. Obviously, there is really no way to determine that we need to change medication until something like this happens. This condition is called Diabetes Insipidus. It has nothing to do with the other type of diabetes you are probably familiar with.
As of Wed morning, she is in the hospital and we are waiting for her levels to balance out. This occurs with changing the amount of fluids she gets and the medication given. Thank you for the prayers and support. We are so grateful to have so many loving people in our lives.
Pastor I pray she has a speedy recovery. She has been a true inspiration to me and my family on the power of our Lord and Savior on the true belief of love and faith in His word. May the Lord give you and Erica the strength and peace that He is in control and let this be a testimony to His undying love for those of Faith. God be with you both, for He is always with her.
Thanks for the update. Cliff & I will keep praying that balance comes quickly. Kenna is so blessed to have such a great mom & dad!
We are in prayer for a quick recovery! We love you Kennady!!!!
Praying for your sweet baby and strength for you all.
i am so sorry to here that she’s struggling. Prayers for her, and you all.
I see this in the babies in the NICU. I am praying!
thanks for the update pastor, lita and my prayers go out to you all….
I believe that God has a purpose for Kennady’s suffering and that it is being used as a blessing to your family and those who know her. I can’t imagine how hard it must be on you guys. I will pray for mercy for Kennady and for those blessings to become evident in your lives as i’m sure they already exist whether you can see them right now or not – you will. Blessings are not always seen from man’s eye as good, but we are but humans. To Jesus be the glory.