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Although we don’t know the Brown’s personally, we know the Brown’s.  We know the weight that they carry and the hope that they have.

Their sweet baby girl Pearl is changing the world.

Pearl and Kennady have the same diagnosis and the same fighting spirit.  We have been honored to meet them through texting, tweeting, and phonecalls.

You can follow them on their journey here.  Here is one of the Brown’s most recent interviews.  via East Nashville Baby Gains International Recognition.